ironic

being born with a rare chromosome disorder you learn to fight the fight.

I am 4'9 (and three quarters) I weight 100lbs to the mark. I have the face of Russell Silver syndrome as we all do (like downs or any other chromosome disorder) and for a bonus I have many of the complications of the disorder.
- vision loss or impairment
- learning disabilities
- Anxiety / Depression
- ADHD/ADD
- mobility due to limbs not being equal
- bowel abnormalities

and this is the short list.

So when my tax guy told Robbie and I about this new tax credit the government came out with I figured hey finally a way to re-pay me for my childhood. Boy was I wrong.

It seems that having a syndrome does not prove that I suffer in my everyday life. -are you kidding me?- I now have to go to my shady family doctor and sell him on the idea of signing this form. I have booked the appointment for later today. I feel like I'm going into an interview. Isn't that silly.

I get so anxious at night that I hardly ever sleep through the night, about what I have no idea. I also have 70 year old knees in a near 40 year old body due to growth hormones taken in my teens - who knew the effects on some of these drugs in the 70's-. One eye is terrible. I cant retain anything new the first time round. list goes on and on.... HOWEVER without the shady doctors signature on the application there will be no tax break for me.

I see this doctor once a year to renew my birth control. 1 in 300,000 people land up with this disorder. He probably has no idea what I'm talking about...

Wish me luck!